Big List of Alzheimer’s Resources

By 2050, more than 66 million people could be living with Alzheimer’s disease worldwide.

Facing an uncertain future can be terrifying for all involved, but this big list of Alzheimer’s and dementia resources can help families learn more about how to take action against the disease, how to cope, and learn more about what’s in store.

List of Alzheimer’s Resources

We’ve started a list of Alzheimer’s resources to act as a guide for anyone who wants to get involved in the fight against the disease — from fundraising for a cure, to learning how to cope with difficult behaviors and raising awareness.

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This list includes our own blog articles as well as links to some of the best and most useful Alzheimer’s resources on the web:

Alzheimer’s Caregiving and Support

• ALZConnected: Alzheimer’s caregiver message boards
• Alzheimer’s, How to Address Wandering: A guide from the Mayo Clinic about how to address the challenging issue of wandering
• Caregiving Tips and Strategies for Success: Caregiving advice from the Alzheimer’s Foundation of America
• Communication Strategies for Dementia: Advice on how to communicate with a loved one who has dementia
• Dementia Care Dos and Don’ts: What not to say or do when dealing with difficult dementia behavior problems
• Dementia Stages: A Place for Mom’s guide to coping with the stages of dementia
• Early Stage Dementia: How to Protect Your Aging Parents’ Assets: Seniors with mild cognitive impairment are at risk for making disastrous money management decisions
• Familiar and Difficult Behaviors of Alzheimer’s Patients : Identifying the most common and difficult behaviors of Alzheimer’s patients such as sundowning and verbal outbursts
• Local Support Groups for Caregivers: Search for local caregiving support groups on the Alzheimer’s Association website
• Sundowner’s Syndrome: Common triggers of Sundowner’s syndrome and ways to cope

Alzheimer’s Fundraising and Awareness

• Alzheimer’s Advocate Network: A community of Alzheimer’s activists
• Alzheimer’s Myths: Separating Fact from Fiction
• Banner Alzheimer’s Institute: “The leading destination for Alzheimer’s disease care and treatment through research”
• Cure Alzheimer’s Fund: Fundraising for Alzheimer’s disease research
• Famous People with Alzheimer’s: Celebrities have been key to increasing public awareness about the illness and efforts to find a cure
• Senior Brain Donors Join Fight Against Dementia: How an unusual donation could make a big difference
• The Reality of Alzheimer’s Disease: Meryl Comer, President of the Geoffrey Beene Alzheimer’s Initiative, on why we need to wage a war on Alzheimer’s, just as we did with cancer
• Walk to End Alzheimer’s: The nation’s largest fundraiser for Alzheimer’s awareness and funds for Alzheimer’s care, support and research

Alzheimer’s Prevention

• Dementia Causing Chemicals: Some ingredients in our food supply have been linked to Alzheimer’s
• Dementia Fighting Vitamins and Minerals: How vitamins and minerals found in a well-rounded diet may promote brain health
• Stress and Alzheimer’s: How researchers are exploring a possible link between stress and dementia
• The Science Behind Diet and Dementia: How diet may play a role in Alzheimer’s and dementia
• Ways to Reduce Your Dementia Risk: Practices linked to a lower probability of developing Alzheimer’s and other kinds of dementia
• What Increases Your Odds of Dementia:  Learn the risk factors linked to dementia
• Ways to Keep the Mind Sharp as We Age: Practical advice about keeping the brain healthy

Alzheimer’s Research and Science

• Alzheimer’s Breakthroughs
• Alzheimer’s Drug Discovery Foundation
• Alzheimer’s Facts and Figures
• Alzheimer’s Research Forum: News and discussions about Alzheimer’s disease
• Dementia Research Centre: One of the UK’s leading centres for clinical research into dementia
• Science Daily Alzheimer’s News: Daily news about Alzheimer’s
• University of Washington Alzheimer’s Disease Research Center
• Yale University Alzheimer’s Disease Research Unit
• Medical News Today: Seniors/Aging News

Alzheimer’s Videos

• Relating to a Loved One with Dementia
• Warning Signs of Alzheimer’s
• What is Memory Care?

Books About Alzheimer’s

• Frank Broyles, “The Barbara Boyle’s Alzheimer’s Playbook:” A short guide to caring for a loved one with Alzheimer’s available in nine languages
• Joanne Koenig Coste, “Learning to Speak Alzheimer’s: A Groundbreaking Approach for Everyone Dealing with Disease:” A guide for families coming to terms with an Alzheimer’s diagnosis
• Martha Stetinus, “Inside the Dementia Epidemic: A Daughter’s Memoir:” A daughter’s personal memoir of caregiving for a mother with dementia
• Nancy L. Mace & Peter V. Rabins, “The 36 Hour Day: A Family Guide to Caring for Persons with Alzheimer’s or a Related Illness:” The classic guide to caring for a loved one with Alzheimer’s
• Patricia Callone, “A Caregiver’s Guide to Alzheimer’s Disease:” A guidebook for caring for an family member Alzheimer’s
• Prudence Twigg & Sandy Burgener, “A Personal Guide to Living with Progressive Memory Loss:” Advice for people who are themselves living with a memory disorder
• “Books for Helping Young People Understand Alzheimer’s:” A list of books to help young people understand what’s happening when a loved one has Alzheimer’s
• Susan Rava, “Swimming Solo: A Daughter’s Memoir of Her Parents, His Parents, and Alzheimer’s Disease“
• Sonya Brewer, “Surviving Normal:” A journal written over a seven year span about caring for a spouse with Alzheimer’s

Clinical Trials

• Reasons to Participate in Clinical Trials: Why participating in trials benefits humanity and Alzheimer’s patients
• Trial Match Tool: The Alzheimer’s Association created this tool to help families find Alzheimer’s clinical studies and trials in their area

Diagnosing Alzheimer’s and Dementia

• A Startling Cause of Misdiagnosed Dementia: Learn about the leading causes of misdiagnosed dementia
• Dementia Treatment: Learn about dementia treatment options
• Early Detection Alzheimer’s Tests: Cutting edge tests to diagnose Alzheimer’s and dementia
• Early Warning Signs of Alzheimer’s: Top signs and symptoms of early stage dementia and Alzheimer’s
• How Do I Know if It’s Alzheimer’s: Help determining whether your loved one’s forgetfulness is just a “senior moment”
• National Memory Screening Program: A nationwide initiative to promote memory screening
• What is Alzheimer’s Memory Care: Learn about Alzheimer’s care and memory care
• What is Dementia: Learn about the differences between Alzheimer’s and other types of dementia

General Reference Alzheimer’s Resources

• American Psychological Association Alzheimer’s Page
• National Institute on Aging Alzheimer’s Page

Genetic Testing and Alzheimer’s

• Alzheimer’s Association on Genetic Testing for Alzheimer’s
• 23andMe Genetic Testing: A private company that provides genetic testing to the general public that can inform those interested in whether they are genetically predisposed to Alzheimer’s

Local Alzheimer’s Association Chapters

• Alzheimer’s Association of Western North Carolina: Charlotte and vicinity
• California Southland Chapter: Los Angeles and greater Southern California
• Capital of Texas Chapter: Austin and vicinity
• Central Ohio Chapter: Serving the communities of Central Ohio
• Colorado Chapter: Denver and greater Colorado
• Delaware Valley Chapter: Philadelphia and the Delaware Valley
• Desert Southwest Chapter: Includes Phoenix, Scottsdale, and Tucson
• Georgia Chapter: Atlanta and great Georgia
• Greater Cincinnati Chapter: Cincinnati and the surrounding area
• Greater Dallas Chapter: The Dallas-Fort Worth area
• Greater Illinois Chapter: Chicago and greater Illinois
• Greater Indiana Chapter: Indianapolis and greater Indiana
• GreaterPennsylvania Chapter: Pittsburgh and greater Pennsylvania
• Houston and Southeast Texas Chapter: The Houston area
• Long Island Chapter: Long Island New York
• Mid South Chapter: Nashville, Tennessee and surrounding areas
• New York City Chapter: Staten Island, Brooklyn, Queens, Manhattan, Bronx
• Northern California & Northern Nevada Chapter: San Francisco, San Jose, Oakland, Fresno, Sacramento, Reno and surrounding areas
• Oregon and SW Washington: Portland and surrounding areas
• San Antonio & South Texas Chapter: San Antonio and the surrounding area
• San Diego: San Diego and the vicinity
• SoutheasternWisconsinChapter: The Milwaukee area
• Utah Chapter: Salt Lake City and greater Utah
• Washington State Chapter: All of Western & Eastern Washington

Movies About Alzheimer’s

• Aurora Borealis: A well-received independent film where dementia plays an important role in the plot
• Away From Her: Julie Christie plays woman who is diagnosed with Alzheimer’s disease
• Iris: The true story of the English writer Iris Murdoch’s battle with Alzheimer’s
• The Alzheimer’s Project: A moving and informative documentary by HBO about Alzheimer’s
• The Savages: A dark comedy starting Phillip Seymour Hoffman about caring for a parent with Alzheimer’s

Music Therapy for Dementia Patients

• Best Music for Dementia Patients: Tips on choosing music for a loved one who has Alzheimer’s disease
• Is Music Therapy an Effective Dementia Treatment?: A discussion with president of a nonprofit foundation promoting music therapy for people with dementia

Nonprofit Organizations

• Alzheimer’s Foundation: A nonprofit focused on promoting quality care for people with Alzheimer’s disease
• The Alzheimer’s Association: The nation’s foremost nonprofit for Alzheimer’s activism, support, and information

Personal Alzheimer’s Blogs

• Ann Napoletan, “Alzheimer’s Journey:” The journey of a longtime Alzheimer’s caregiver
• Bob DeMarco, “Alzheimer’s Reading Room:” Ongoing posts about the latest developments
• Carole Larkin, “Alzheimer’s Speaks:” By a caregiver and advocate
• Gerda Saunders – “Dementia Fieldnotes:” By an author who has vascular dementia
• Gevera Bert, “Had a Dad” Alzheimer’s Blog:  Experiences as a caregiver and as an advocate in the fight against Alzheimer’s disease
• Joan Gershman, “The Alzheimer’s Spouse:” About caring for a spouse with Alzheimer’s
• Joseph Potocny,“Living with Alzheimer’s“

Did we miss any Alzheimer’s resources or organizations above? Tell us which resources we should add to this list in the comments below.

Related Articles:

• A New Perspective on Alzheimer’s and Dementia
• The State of Alzheimer’s
• What to Say to Someone with Alzheimer’s