“Hospice focuses on the person, and not the disease. It makes the patient’s wishes and priorities a priority in the care plan. Hospice focuses on quality of life and helping a person live as fully as possible despite a terminal illness,” says Jon Radulovic, vice president of communications at the National Hospice and Palliative Care Association in Alexandria, Virginia.
Responding to seniors’ desires, many assisted living communities embrace an “aging in place” philosophy. This means providing increasing levels of care, within limits, at their home in an assisted living community. In many states, terminally ill residents can receive hospice care, or end-of-life care, without leaving their senior living community.
Assisted living communities and hospice caregivers work as a collaborative team. Learn more about hospice services, requirements, costs, and staffing in assisted living.
It’s a common misconception that people must go somewhere to receive hospice services. In fact, while there are facilities devoted solely to hospice, the vast majority of people receive hospice care at home, says Radulovic. For assisted living residents in most states, this means nurses, aides, and other care providers come to the community.
There are many benefits to receiving hospice care in assisted living. Hospice providers offer physical and emotional comfort to seniors during their final months, weeks, or days. They also support family members as they navigate end-of-life decisions. By providing these services in assisted living, residents spend their last days in the comfort of their own homes.
Four states — Idaho, Mississippi, Montana, and North Dakota — don’t allow hospice care to be provided in an assisted living community, according to Radulovic. In other states, hospice care is allowed at the discretion of the senior community.
Some states require assisted living communities to inform a regulatory agency once someone needs hospice. This is done by filing a waiver, which establishes that an agreement of care has been created between the hospice provider and the assisted living community.
Don’t put off talking with staff or caregivers at your loved one’s community, and, if possible, research hospice providers in advance, says Radulovic. Terminally ill residents and their families have a better chance of finding suitable hospice care if they seek providers sooner rather than later. “Hospice is associated with imminent death, and it’s not accurate,” says Radulovic. “It’s well suited for the final months of life, not days.”
Once a resident needs hospice, the assisted living community and interdisciplinary team work to create an organized care plan. This includes answering detailed questions such as:
Hospice care at assisted living facilities is covered by Medicare and most private health insurance plans. It provides what’s known as “comfort care,” or care that eases pain and alleviates discomfort when a patient’s illness is no longer responding to treatment.
The Medicare hospice benefit covers the care team, equipment, medications, and therapies. “It’s designed to be all-inclusive,” says Radulovic.
To qualify for Medicare’s benefit, a person must:
Medicare provides care for two 90-day periods in hospice, which is followed by an unlimited number of 60-day periods. At the start of each care period, a doctor must reassess whether the patient has six months or less to live.
There’s no deductible for hospice services, although sometimes there’s a small co-payment for medications. The Veterans Administration also provides hospice assistance for veterans. Medicaid can provide hospice coverage as well.
Although hospice and palliative care are similar in reducing pain and enhancing a person’s quality of life, there are distinct differences between the two types of care:
Despite what many people believe, hospice is not “giving up,” says Radulovic. “It’s real medicine and real care. Hospice can increase quality of life, and in some cases, even length.”
In a study of nearly 4,500 Medicare beneficiaries, the average survival period was 29 days longer for hospice patients than non-hospice patients. Hospice patients with congestive heart failure, lung cancer, pancreatic cancer, and colon cancer had a significantly longer average survival period than patients who opted out of hospice care.
A doctor’s referral is generally all that’s needed for a patient to become eligible for hospice. Once it begins, hospice care can be stopped at any time by the patient if they decide they want to pursue curative treatments.
By working to meet all the patient’s needs, hospice providers help bring peace of mind to the patient’s family. Hospice services offer this collective care through:
Hospice care in assisted living aims to give residents a comfortable and dignified end of life.
A hospice care staff often consists of:
Hospice nurses play a particularly pivotal role by working with the staff of the assisted living communities to coordinate care plans. Although hospice nurses administer care, they do more than provide medications like painkillers and sedatives. They educate the patient’s primary caregiver about their condition, and provide ongoing emotional support and counseling to the patient and the patient’s loved ones.
“A hospice team has skills specific to someone who is at the end of their life,” says Radulovic. “A hospice nurse can be tuned into the unique needs of a person at the end of life.”
Hospice also provides respite care, which gives loved ones the opportunity to take a break from caregiving. Volunteers are scheduled regularly to help with errands and meal delivery. The care plan may be adjusted weekly depending on team members’ availability and the patient’s updated needs.
A Place for Mom can assist families interested in assisted living communities that coordinate with hospice care. Our Senior Living Advisors provide families a tailored list of communities that meet their loved one’s specific needs and preferences.
Merritt Whitely is an editor at A Place for Mom. She developed health content for seniors at Hearing Charities of America and the National Hearing Aid Project. She’s also managed multiple print publications, blogs, and social media channels for seniors as the marketing manager at Sertoma, Inc.