Jun 29, 2016 - 08:20 AM
First, I am truly sorry about you father’s condition and your frustration as a caregiver. You both face difficulties ahead and having more information would certainly help.
Binswanger’s disease is a rare form of dementia characterized by loss of memory and intellectual function and by changes in mood. It is a progressive neurological disorder resulting from white brain matter atrophy. Sadly, as of today, it has no cure.
Check with your father’s doctor about his plan of care. In most cases, treatment plans include medications to control mood swings and depression as well as blood pressure, seizures, and rhythm irregularities in the heart. Treatment is designed to reduce the adverse effects of these associated, underlying conditions. The Alzheimer’s medication, donepezil, may also help Binswanger’s patients.
As the disease progresses, mental ability and mobility will decline. Your father will likely require a nurturing environment that provides for medical care and safety. That’s probably why he’s in an assisted living facility today – but do note that more support will likely be required as the disease progresses.
Your feeling alone as a caregiver with this particular, rare disease is understandable. Perhaps you might find some good advice, shared experiences and perhaps a little comfort in a dementia support group.